Tomorrow I am scheduled for a hearing test and a ECoG test. I've had numerous hearing tests but the ECoG is a new one for me. From what I understand, they put electrodes in your ear and can determine, with some degree of error, whether or not you have Meniere's in that ear. I am only having it done in my "good" ear. I have been counting down the days until this test because I am so desperate for answers. Now that I'm facing it tomorrow, I'm a mess. I'm nervous. Prone to fits of crying. The stress around me is not helping things either.
I have myself convinced of the worst news. My instability has been so bad and I have this strange but intense pressure and pain deep inside my "good" ear that I've just assumed I've fallen into that oh so lucky 15% that go bilateral. (15% is my doctor's estimate, some are as high as 50%.) The hearing test will likely be the ultimate give away in determining the status of my ear. My right ear, which is my good ear, has held steady with great hearing throughout the 12 years of having this. If there's any decline in the lower frequencies, then that's a pretty sure bet, that ear is going too.
I spent this past weekend at 2 separate kid's birthday parties. On Saturday, I barely made it to the party as I was so off-balance. Once I got there, I just sat in the same chair pretty much the whole time and took some Valium to help. On Sunday, at the other party, I had to move around more and had to take my afternoon Klonopin dose early and take more Valium than usual to get through. It was at this party that I noticed my hearing was off. There was a lot of background noise as you can imagine. Lots of adults talking, kids playing and I had a hard time understanding people when they tried to talk to me. Come to think of it, I noticed this Saturday as well but the problem there was the loud background music that was being played.
What do you do when you find out you are bilateral? How do you progress with treatment from there? Also, if my wishes come true and I'm not bilateral, what's next for me? How do I get relief from these latest symptoms? I am tired of waiting this out. I'm ready to move on to another treatment. The good thing about my doctor is that he's looking at the long-term and is able to "talk me down" from doing anything drastic, like major surgery, because he's looking at potential problems in the future. Meanwhile, I'm so impatient, I'm willing to do just about anything to get some relief and get back to where I was before.
Monday, April 19, 2010
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Hi my name is Sherry and I was diagnosed 9 months ago at the age of 60. In fact this all happened on my 60th birthday. With all my research on line I now know that I will have this the rest of my life. But it is people like you that has given me hope to be able to go forward. You are raising your children and staying active and I wish you the best and pray that you will get good results from your next tests. There is no pattern for this and one day you can tell someone you are better then the next day and weeks it will completely turn for the worst. Good luck and Thank you for your great blog.
ReplyDeleteSherry-
ReplyDeleteWow that's just not right to get Meniere's as a birthday gift!! I hope you are doing well and having many good days. There is always hope which is what I cling to on many days when things are bad.
Thanks for your kind words. I am just thrilled that my little blog of ramblings can be of benefit to anyone! ;-)
Best of luck to you!
Good luck Nicki!
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