It's been a week now. I've been taking Acyclovir 800mg 3x/day. So far I can't tell any major difference. About day 3 into it, I had a great day where I felt "normal" and was able to get out and play with the kids. It was awesome but I'm not so sure I can chalk that up to the new medication. Even before the medication, I would occasionally have a "good" day like that. I do feel a little more stable getting around the house. I'm not holding to things as much but again, still hard to say if that's just the natural course of this or the medicine. Yesterday, I had a very busy afternoon with having to take the kids to the doctor and dentist. I got pretty dizzy during all of that and had to take 1mg of Valium. I haven't noticed any change in hearing or my tinnitus. My tinnitus has been extremely loud since about a week before I started this medication. I'm dizzy and tired this morning. I have read that some people get worse before they get better. I've also read that the longer you have this disease, the longer it takes to notice any changes with the Acyclovir. I've had this for over 12 years so it may take me awhile.
Side effects noted so far have been drowsiness and I'm sleeping a lot more. I can easily sleep 10-11 hours a night. The Acyclovir also seems to be causing some minor gastrointestinal problems but nothing serious and no nausea.
So that's week one. I have a busy afternoon today as well. We'll see how it goes and I plan to report back again in another week to see if anything has changed. Of course, if I notice anything significant before then, I'll be back to write about it when it happens.
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